Pod Cast Listings
“I don’t want to be cruel but...it is more than just the older people that has these handicaps.”
Jeff Simpson has Multiple Sclerosis. MS develops differently for every person. Jeff lives in an apartment complex in a two bedroom apartment. He lives with his wife and sixteen year old daughter.
“I don’t want to be cruel but a lot of us out there that’s disabled and having a problem, handicapped stuff; that it is more than just the older people that has these handicaps.” Jeff is forty one years old. “It is hard for me to get anything from anybody.” Jeff explained as he shared his experiences in the community and working with various agencies.
Jeff’s wife and daughter were able to move into the two bedroom apartment after a friend lost his wife and then committed suicide. That opened the apartment.
Jeff’s MS has him paralyzed on the right side at this point. He has learned to sign his name with his left hand but writing is still a challenge.
Jeff began working with SKIL in May of 2010 when he went onto the Physically Disabled Waiver waiting list. “It seems like there is no end to the waiting list.”
The waiting has increased the burden on the family. Jeff’s wife works two jobs close to the apartment. This keeps her close but still must work eleven hours a day. Most of her check goes to health insurance. “She brings home approximately $100.00 a month the rest goes to insurance.”
Jeff has a need to have help around the house. Someone is needed to clean the house, and with meals. Jeff is also confined to home as a result of no transportation. Travel to the doctor is a major concern even with doctor visits being converted to quarterly visits.
Jeff has worked in the mortuary business and also operated an offset printing press. He owned and operated his own business for several years in Columbus. He began working at the age of seventeen. Life is extremely difficult on the family as stress and pressure to survive is a constant fact of life. Jeff realizes that his daughter will also have to begin working once she is of age.
There is no way to predict how each person's condition with MS will progress. In addition to being paralyzed Jeff is aware that MS also can cause tremors. Fatigue is also a big problem if a person has MS. Vision problems can also be associated with the disease. Memory problems are also often early signs of MS.
Jeff understands that there is no way to predict how his condition will progress. But he knows that waiting for what he has already been approved to receive seems like an eternity. Other people in the same apartment complex are able to access Home and Community based services while Jeff’s rights to services are being denied.